November 16, 2021 Parent Editorial: The culture of research communication in neonatal intensive care units: key stakeholder perspectives
October 5, 2021 Capturing Clinician’s Experiences Repurposing Drugs to Inform Future Studies During COVID-19
September 29, 2021 Volumetric MRI-Based Biomarkers in Huntington’s Disease: An Evidentiary Review C-Path's Huntington's Disease Regulatory Science Consortium (HD-RSC) has published a new paper on volumetric MRI-based...
September 14, 2021 Inter-rater reliability of the neonatal adverse event severity scale using real-world Neonatal clinical trial data
August 7, 2021 Antenatal and perinatal factors influencing neonatal blood pressure: a systematic review
August 1, 2021 A Disease Progression Model to Quantify the Nonmotor Symptoms of Parkinson’s Disease in Participants With Leucine-Rich Repeat Kinase 2 Mutation Ahamadi M, Mehrotra N, Hanan N, Lai Yee K, Gheyas F, Anton J, Bani M, Boroojerdi B, Smit H, Weidemann J, Macha S, Thuillier V...
July 8, 2021 Digital Progression Biomarkers as Novel Endpoints in Clinical Trials: A Multistakeholder Perspective Stephenson D, Badawy R, Mathur S, Tome M, Rochester L. Digital Progression Biomarkers as Novel Endpoints in Clinical Trials...
May 20, 2021 The Role of Patient-reported Outcomes and Medication Adherence Assessment in Patient-focused Drug Development for Solid Organ Transplantation
April 7, 2021 FAIR data sharing: The roles of common data elements and harmonization. Journal of Biomedical Informatics. 2020 July D. Kush, D. Warzel, M.A. Kush, A. Sherman, E.A. Navarro, R. Fitzmartin, F. Pétavy, J. Galvez, L.B. Becnel, F.L. Zhou, N. Harmon..
April 7, 2021 Standardized Data Structures in Rare Diseases: CDISC User Guides for Duchenne Muscular Dystrophy and Huntington’s Disease Mullin, A.P., Corey, D., Turner, E.C., Liwski, R., Olson, D., Burton, J., Sivakumaran, S., Hudson, L.D., Romero, K., Stephenson, D
