December 16, 2022 Quantitative Study Findings: Comparability of a Provisioned Device Versus Bring Your Own Device…
December 14, 2022 View Now | Shared Stewardship in Collaborative Curation of Rare Disease Datasets Patient data is a key asset in understanding the progression of rare diseases and may it be provided in a variety of forms from a
December 11, 2022-December 14, 2022 15th Annual Conference on the Science of Dissemination and Implementation in Health Dec 11-14, Academy Health, Washington, DC Summary: Through a combination of plenaries, workshops, breakout, and poster sessions, t
December 6, 2022-December 8, 2022 The Future of Health Summit Partnering for Patients, a Forum of the Future of Health Summit Washington, DC. December 6-8, 2022 “Creating New Markets for App
December 1, 2022 C-Path and Ultragenyx Announce Data Sharing Agreement to Support Rare Disease Treatment and Novel Therapies TUCSON, Ariz., Dec. 1, 2022 — Critical Path Institute (C-Path) and Ultragenyx Pharmaceutical, Inc., (NASDAQ: RARE), a biopharmac
November 16, 2022 Empowering drug development: Leveraging insights from imaging technologies to enable the advancement of digital heath technologies
November 16, 2022 The culture of research communication in neonatal intensive care units: key stakeholder perspectives
November 15, 2022-November 17, 2022 Selecting Outcomes That Are Truly Meaningful to Patients Panel discussion at the National Organization of Rare Disorders (NORD) Breakthrough Summit in Washington, DC, held October 15 –
November 14, 2022-November 15, 2022 10th Annual Drug Repositioning & Repurposing Conference November 14-15, Washington, DC Join us at the 10TH ANNUAL DRUG REPOSITIONING AND REPURPOSING CONFERENCE, where attendees will mee
