April 7, 2021 Development of a regulatory-ready clinical trial simulation tool for Duchenne muscular dystrophy poster WMS 2020
April 7, 2021 Development of a regulatory-ready clinical trial simulation tool for Duchenne muscular dystrophy Abstract WMS 2020
April 7, 2021 Standardized Data Structures in Rare Diseases: CDISC User Guides for Duchenne Muscular Dystrophy and Huntington’s Disease Mullin, A.P., Corey, D., Turner, E.C., Liwski, R., Olson, D., Burton, J., Sivakumaran, S., Hudson, L.D., Romero, K., Stephenson, D
April 7, 2021 FAIR data sharing: The roles of common data elements and harmonization. Journal of Biomedical Informatics. 2020 July D. Kush, D. Warzel, M.A. Kush, A. Sherman, E.A. Navarro, R. Fitzmartin, F. Pétavy, J. Galvez, L.B. Becnel, F.L. Zhou, N. Harmon..
March 31, 2021 View Now: 2021 PSTC Virtual Workshop—March 31, 2021 The Predictive Safety Testing Consortium (PSTC) launched its 15th anniversary celebration with a virtual public workshop. Scientis
March 20, 2021 Current state of cardiac troponin testing in Duchenne muscular dystrophy cardiomyopathy: review and recommendations from the Parent Project Muscular Dystrophy expert panel
March 8, 2021 CORRECTION: Evaluation of Multiple Sclerosis Disability Outcome Measures Using Pooled Clinical Trial Data
February 17, 2021 WEBINAR: eCOA: Getting Better Together Initiative – An Update from C-Path’s PRO Consortium and ePRO Consortium This webinar was hosted by the DIA Study Endpoints Community and presented jointly by the PRO Consortium and ePRO Consortium. Date
February 9, 2021-February 10, 2021 SHIP-MD 2021 Virtual Workshop Join Us February 9th, 10th, 11th 2021 Free Public Virtual Meeting and Workshop All stakeholders interested in pediatric medical de